On Saturday Sept 23, the Kill Devil Hills chapter participated in the 9th annual Throwdown Surf Classic. The contest is an annual tradition where local surfers from the Outer Banks come together, enjoy a day at the beach, compete, and most of all support a great cause. This year’s goal was to support local Devin Williams, a 5th grader who has been diagnosed with Infantile Battens Disease. Devin is 1 of 6 in the world with this rare disease, which has no cure. Over $14,000 was raised for his family through the event.
From the KDH Chapter: “We had a surfboard shaped by Rascoe Hunt and painted by artist Meg Rubino, and had everyone at the contest sign it. They presented it to him at the end of the day. When he received the board he looked at us and said, “This is for me?” He proudly slung it under his arm like he was going surfing, looked back at us and said, “Slater.” The artist painted a picture of him surfing the wave on the board and fish underneath in the ocean because he loves fishing. Kids also decorated over 100 shells with pictures, prayers and kind words.”
From the contest organizers: “Devin is a loving, caring and outgoing kid who loves to fish. His favorite fish to catch is Mahi Mahi. Mahi Mahi means very strong in Hawaiian. As everyone can imagine the gradual deterioration is heart breaking to watch. There is hope of research starting on this disease in the future. Can the research help Devin in time? We aren’t sure, but we are going to try to help him. For more info about Devin and his illness you can follow his Facebook page Devin Tackles Battens Disease.”